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Weight

This is about a weightlifter and parent, not necessarily in that order.

The New York Times ran this in sports.

I loved her story, but I didn’t love the story, not the way they covered it. The whole thing starts with a very traditional-role narrative. First, the reporter sets it up:

Melanie Roach is a former gymnast who owns a gymnastics facility. Her husband is a state legislator. At 33, she is the mother of three young children, including 5-year-old Drew, who is autistic. And she can lift 238 pounds over her head.

Then, he (Greg Bishop) spends the first half of the piece talking about her role as the mother of an autistic child:

The problems she encountered in competition were nothing compared with the challenge she confronted with Drew after his autism was diagnosed in 2005. Roach said she was preoccupied with everything he would never be able to do — school dances, church missions, college classes. He did not have bad days; he had bad weeks, bad months, filled with relentless tantrums.

“It was literally in a week my life changed,” Roach said. “I went into depression. I went through a mourning process. Almost like I lost a child.”

She said she would kneel at his bedside every night, praying he would get better.

Not that I didn’t like that part of the story. In fact, it resonated with me quite a bit. I have young children with health problems — though not autism. So I felt a profound empathy with this fellow parent whose parenting challenges can be overwhelming, and I liked that part. But I saw it as positioned in the story in a way that it would not have been with a man.

The piece goes on:

“She learned that no matter how much money and time she put into it, she couldn’t change the outcome,” said her husband, Dan. “That has really helped with lifting. In the end, it’s the same concept.”

Without her experiences as a parent, the rest is a conventional sports narrative. She converted from gymnastics to weightlifting (so did US Olympic weightlifter Tara Nott, BTW; I think that’s a more common conversion than might immediately be apparent as both are dependent on explosive power, flexibility and balance and reward short people). She was an overnight sensation and set a record in 1998, but then injuries took their toll; she had several comeback attempts and a lot of pain and finally back surgery; now she’s the aging vet looking for one last shot at gold. She’s paid her dues and trained through a lot of pain to get here. That’s a conventional narrative, but it’s a good story. I’m totally with her on that. Go Melanie!

But the reporter’s interpretation of the interplay between Melanie Roach, Champion Weightlifter and Melanie Roach, Mother bothered me:

Thrush can tell immediately how well Roach is balancing the complexities of her life. He said he knew Roach was struggling with the pressure at the national championships in March, when she successfully lifted only two of six attempts. To qualify for Beijing, she must finish fourth or better in the 53-kilogram weight class at the Olympic trials in Atlanta on May 17.

“You’ll have an opportunity to be an average, everyday woman after August,” Thrush said he tells Roach when she seems distracted. “You need to be selfish now.”

Team Roach marches on through a life that Dan Roach described as “organized chaos.” Bonnie Kosoff, Melanie’s mother, moved in recently to take care of the children. Summers and Thrush travel to events.

“You know how they say it takes a village to raise a child?” Kosoff said. “Well, it takes a village to get someone to the Olympics, too.”
The changed outlook remains. Had Roach gone to the Olympics in 2000, she said, she would not have three kids or the business. Had there been no Drew, she may never have learned what Thrush tried to teach her all along — the concept of slow and small but steady and incremental progress.

But the biggest change that Drew inspired was in Roach, the athlete. She now enjoys the Olympic quest, 14 years after it started.

(Emphasis supplied.)

I don’t know Melanie Roach and I can’t speak for her. It’s possible that this reporting is completely true to her own interpretation of her experiences. Or it could be the reporter’s positioning. But I think that the reporter is highlighting things that would be true but taken for granted for male athletes.

If a man of 31, an international class athlete, were headed to the Olympic trials after a career of triumph, injuries and comebacks, with three kids and a spouse, it would also be true that it took a village to get him there. But I don’t think it would get much attention. I think everyone would just call it normal. But when a woman has kids, how she negotiates the demands of the rest of her life is The Big Question, the one that prompts several paragraphs in a major newspaper. It’s not just the way the role of mother is presumed to take over a woman’s life; it’s especially that this presumption goes unexamined.

And it wasn’t just the reporter. Her coach’s juxtaposition of “average everyday woman” (clearly a pejorative there) with high-level competition and positioning her ambition as “selfish” is exactly the problem. When men compete, they represent. The village isn’t just supporting them, they are bringing the triumph home for their family and friends, communities, nations, etc. But this guy is telling his lifter that she’s doing it all for herself. Way to motivate, coach!

I don’t have a good line to summarize this. I liked the athlete and I was bothered by the way it was framed.

p.s. there is a lot in the article that I didn’t raise. She’s Mormon, she had three home births, a few other things. It’s an interesting read for several reasons.

Update: In comments, Donna pointed out something that I did not, the ablism. This woman’s autistic son is treated as a burden rather than a person.


44 thoughts on Weight

  1. I’ve noticed this type of narrative regarding women in general. No matter the subject for the article, the marital status and whether she is a mother or not gets interjected even when it’s totally irrelavant.

    Several months ago I read an article about two women astronauts being in the space station at the same time. The article mangaged to throw in their family status, but left out that information regarding the male astronauts on the mission.

  2. You completely missed the ableism. She mourns the loss of her child, because all she is left with is a burden, a problem, an anchor weighing her down. He’s no longer a human being, he’s a crisis to be solved minute by minute.

  3. He’s no longer a human being, he’s a crisis to be solved minute by minute.

    I did. Thank you, Donna. I tend to process childhood medical issues through the lens of my own experiences, which are (so far) not disability issues. So I have a blind spot and I missed that.

  4. Olivia is right about the “typical narrative” about women’s lives regardless of the context-family and spouses are hi-lighted to a degree that they aren’t in stories about men. It’s as if some explanation is needed for why/how she is able to live successfully outside traditional gender expectations.

    Femininity apologies, too, seem to be so the norm in sports in general, though usually it’s in the form of sexual objectification (“my body may be strong enough to threaten gender assumptions and kick your male ass, but I’m still sexually attractive, and I’ll take off lots of clothes to do it!”). Here the apology comes in the form of “I’m a good mother.”

    And the whole “selfish” thing at the end of your piece-exactly!

  5. “It was literally in a week my life changed,” Roach said. “I went into depression. I went through a mourning process. Almost like I lost a child.”

    Obviously I don’t know this family, but I see this as terrible. My brother is profoundly autistic (non-verbal) and I would never treat him like my dead brother or ignore him. I celebrate his ability, not mourn his disability.

  6. It is not unusual or wrong to mourn the loss of normalcy when one has an autistic or other non-neurotypical child. The mother had hopes and dreams for her child that will never be realized. How is it “terrible” to mourn that? She’ll finish mourning and accept the new reality, and love that child every bit as much as the one she expected.

    So get the hell over your judgmentalism.

  7. Another problem I have with this article is the sensationalizing of kids with autism in the general media. Autism represented in the media is the disability of those under 10, typically white (obviously Drew can’t help being either of these things), moderately verbal, middle-to-upper-middle class. And while my brother is many of those things as well, it’s a very limiting stereotype just as that of the “idiot savant.” The autism experience, at least for me, is as much my brother’s enjoyment of aquatic sports as it is him smearing his feces on his bedroom wall (sorry for the ranting).

  8. I’m sorry my post came across as judgmental, it’s clear from the rest of the article that she does indeed love her son. I was merely saying that Drew is certainly portrayed in the article as a “burden” and as the means to the ends of his mother’s success.

  9. After Donna brought it to my attention, I did see the ablism; but I think it may be as attributable to the reporter’s choices as to the woman profiled. Out of what is certainly a ton a quotes, he chose the quotes and the context. Unlike a blog post that links the source material, in a newspaper profile we cannot read the underlying transcripts to see if he accurately reflects her attitude or is imposing his own.

  10. Of course. I admit I jumped to extreme conclusions about the women, and I think the ableism in the article is probably a fair mix of her and the writer.

  11. I’ll echo what other’s have said on this. The ableism is really disheartening.

    I once read an article about a young girl with Rett Syndrome, a condition similar to autism, only the people with it are also severely physically disabled, have multiple medical problems, and usually die young. However, her parents made it very clear how much they loved her and cherished every day they have with her. Although I never want to frame disability as a “tragedy”, it could be said this girl was “worse off” than this woman’s son, and yet, her parents were much more positive.

  12. Thomas I suspect that it’s the author of the article’s biases and stereotypes too, most people think like Luna.

    Luna what if there was a dude who got married only to find out that his wife isn’t interested in cooking for him every day, or doing his laundry, or picking up his socks and wiping off his toothpaste in the sink and where he missed the toilet bowl every morning, etc etc etc. I bet he mourns the loss of a “normal” wife like dear old dad and gramps had before him. Let’s not be judgemental though.

    You’re doing what men do regarding feminism with the “What about the poor poor menz!?” but instead you’re saying, “What about the able bodied!?” Poor poor able bodied people, having their hopes and dreams dashed and having to put up with those troublesome disabled kids.

    By the way, my oldest son is autistic. My first reaction was holy shit! What if I can’t handle this? What if I can’t give him what he needs? Then I got down to business of finding out what I can do at home to give him what he needs and making sure he got what he needs out of the school.

  13. It is not unusual or wrong to mourn the loss of normalcy when one has an autistic or other non-neurotypical child. The mother had hopes and dreams for her child that will never be realized. How is it “terrible” to mourn that?

    I’m autistic, and I feel that I should point out that we don’t exist to fulfill anyone’s hopes and dreams but our own.

  14. My son is autistic and the only hopes and dreams that he should fulfill are his own, just like everyone else. Normal is a very misunderstood concept.

  15. I actually don’t think it’s a bad thing to interweave things like motherhood and work/sports/other trials. I think it’s a huge reality that these things DO intersect in women’s lives.

    However. THEY ALSO INTERSECT IN MEN’S LIVES. What bothers me is not that women are portrayed this way, but that men aren’t as if their wives/husbands/spouses and children and personal lives didn’t affect their careers/sports/etc at all!

  16. You’re doing what men do regarding feminism with the “What about the poor poor menz!?” but instead you’re saying, “What about the able bodied!?”

    Oh bullshit. I totally call bullshit. I’m doing no such bloody thing. I’m saying that woman had hopes and dreams for her kid, and she was honest enough to say how she was feeling about it, and it’s judgmental as all hell for people to say how terrible she is for it.

    And so what if you have an autistic kid too? You saying that your way of dealing was inherently better? Or that it’s the only valid way of dealing?

  17. Luna, did you stop to think about how those feelings affect the child in question?

    Would it be acceptable for a parent who really really wanted their neurotypical child to become a lawyer to go into mourning as if the child were dead when they choose art instead? If not, then why is it that failure to fulfill a parent’s vicarious dreams is grounds for mourning once autism is a factor?

  18. Donna, I think your analogous situation with the patriarchal male wanting a “normal” wife isn’t really a perfect analogy – whether or not the wife wanted to cook and clean and look after her husband is something that two people should be reasonably expected to discuss before getting married/partnered, whereas autism/disability mostly happens unexpectedly. I think Luna might be wording her defense of the woman with insensitive words like ‘normal’, but I don’t think she is wrong. Dealing with disability, (as a parent, a partner, a child, a friend) especially since it is unexpected, is hard. Putting aside the fact that the child is treated largely as a burden in the article (which is wrong, but may be due to the reporter’s biases), I don’t dare begrudge the mother any frustration or pain she felt at the time. I don’t think it’s necessary to speculate what she means by mourning because it’s an extremely hard situation to be in and that may just be how she felt.

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  20. Obviously I don’t know this family, but I see this as terrible. My brother is profoundly autistic (non-verbal) and I would never treat him like my dead brother or ignore him. I celebrate his ability, not mourn his disability.

    Not all autism is the same. For example I heard of one story where parents had to give up their child because once he got too large he was so physically violent that they could no longer live with him.

    Hers sounds more like that (with the bit about the tantrums). It is wrong to judge yourself superior to her just because you were more lucky than her.

  21. You can’t legislate how this woman, or any woman, is “supposed to” feel about having a child with challenges beyond average. Women are criticized no matter what they do. Hell, I was sad for a little while when I didn’t have a girl, and it was my last chance for one. Doesn’t mean I’m not madly in love with my sons. Doesn’t mean I’m a bad mother for being disappointed in something. Screw all you people loftily declaring this mother has to be happy, fulfilled, and instantly accepting of what amounted to a huge change in her kid’s life, her life, and the family’s life.

    Acknowledging that autism presents extraordinary challenges for children and parents is not “ableist.” The article may be. But friends of mine who are parents of autistic children definitely struggle under the stress of the challenge. To deny this is to deny their humanity, and their right to be imperfect parents.

  22. I have a son with autism. And I agree with Luna — there is a mourning, a grieving process. It is a lifelong diagnosis and it a huge concept to process when you look at your sweet child. Until that day you had assumed he/she would have all the ease in the world going through life and now you know there will be serious challenges. You worry for your child, you worry that you won’t be able to guide him through this, there’s an enormity and gravity to getting a diagnosis like that. Its a life-changing event, and those are never without huge feeling. That’s never to say you don’t love the child he is, you just realize that you had no idea who the child was to begin with. There is a feeling as failing as a parent. Its, well, just hard.

    Usually the diagnosis comes at a time when the behaviors are really severe. Hours and hours of tantrums — been there, done that. Its a lot to deal with. You have no idea how to help your child. You realize that there is *something* you could do but you have no idea what it is.

    My son launched into a tantrum one time that was so high-powered and went on for such a long time, that I finally (5 hours later) took him to the hospital. I was bawling as badly as he was at that point. I just couldn’t help him and he didn’t know how to sooth himself and we were just… lost. The ER intake person looked at us like we were insane. We sat down to wait, with all the stares, and suddenly my child just konked out from sheer exhaustion. I picked him up and snuck out of there. A diagnosis was very hard to hear, but then we began to understand things and that helped. We were able to manage his environment and give him coping strategies to avoid these episodes to begin with. Of course, this takes time and commitment and you will see how quickly your support system slips away when their presence in your life requires their cooperation in this, which I think is one big reason why the divorce rate is so high among families with autism.

    The idea that this child is a burden… I think that’s just the way the article is written. I think the mother and her family have done a remarkable job of supporting her career that requires travel in a way that leaves her children in a positive, caring situation. It is difficult to find a good childcare provider for any child, and add to that finding someone who will accept the child with autism in a positive way… that’s fabulous. I have been a single mother, and finding good care is tough — I’ve rarely been able to be away from home.

  23. Luna, are you aware of the history of language used to describe autistic children – how talking about the child they could have been if only they’d been normal is dead now, and the autistic child is some kind of changeling replacement? This language is used by parents, by the media, by politicians all the time. There was recently an awareness campaign that characterized autism as kidnapping children and replacing them.

    When the same language that has been used over and over again to dehumanize people is used one more time to dehumanize people, it’s the same ablism as it ever was. No one’s being oversensitive or reading too much into it.

    It also couldn’t hurt to find out what autistic people say about this kind of language.

  24. It’s also dehumanizing to deny a parent their own reaction to a situation. Unless you’re using a different definition of dehumanizing.

  25. I agree with Eva, the problem is that motherhood seriously impacts on a woman’s activities in other areas of her life. There are many reasons for this – lack of affordable, quality childcare, lack of support from the father, extended family and wider society, lack of infrastructure and facilities, poverty AND the woman’s own expectations of motherhood. Many women still put themselves under pressure to conform to a very dysfunctional, one-dimensional, repressed 1950s stereotypical housewife ! Although it is hard until they ‘kill’ this ideal in their own head they will never be free to lead a fulfilled life.

  26. Luna what if there was a dude who got married only to find out that his wife isn’t interested in cooking for him every day, or doing his laundry, or picking up his socks and wiping off his toothpaste in the sink and where he missed the toilet bowl every morning, etc etc etc. I bet he mourns the loss of a “normal” wife like dear old dad and gramps had before him. Let’s not be judgemental though.

    My husband is a good guy, but he does occasionally have twinges that I’m at about the cleanliness level of a frat boy (I have been known to leave rotting food under the bed). It doesn’t mean he doesn’t love me. We were together six years (living together for two) before we got married, so he knew what he was getting into. That doesn’t stop him from sometimes getting frustrated that I’m not “normal.”

    Given how often parents are told that their children are a reflection on them, and that anything that goes “wrong” with the child must be the parents’ fault, why is it such a weird idea that a parent would be upset at a diagnosis of autism or another disability? My aunt and uncle were upset that my cousin was born brain-damaged and developmentally disabled and, yes, they went through a period of mourning the difference between their fantasy child and the child they had. And then they moved on and raised my cousin to be an independent woman despite her disabilities.

    It’s only fairly recently that autism was recognized as a neurological disorder and not the result of bad parenting, so there is still some lingering feeling by parents that they must have done something wrong to screw up their kid and “make them” autistic. I think that’s part of the basis for the conviction by some people that the preservatives in vaccines cause autism — that way, they can point to something that they did that was within their control rather than have to face the fact that their child’s autism has very little to do with them.

  27. Just because a reaction is “understandable” doesn’t make it right. Considering the society that we live in, alot of white privileged reactions and racism is understandable. If your major source of information about black people is news accounts of arrests of black people, and movie/tv portrayals of them as criminals, when you see a black man you might lock your car doors or hurry away. This reaction is “understandable” but not right.

    Let’s try something different, what if your daughter comes to you and says she is a lesbian. There goes all your plans for a white wedding and your dreams of family gatherings with her and her husband and 2.3 children. Let’s not be judgemental, if you throw her out of the house or “forget” to invite her and her partner to your family gatherings so that she doesn’t embarrass you in front of your parents, and aunts and uncles, and cousins, etc. Hmmm sorry that doesn’t work for me any better than thinking of a child with a disability as a burden.

    If you have children to live your life through them one of two things is likely to happen, you will resent them when they disappoint you and decide to live their own lives, or they will resent you when they have to put aside their own aspirations for yours.

    What’s really pissing me off is that the oppressed and discriminated person is always forgotten, is dehumanized, in our rush to understand the privileged person and her reaction. We’re always so concerned about that persons loss, because life is supposed to be easy and perfect for the privileged, instead of the complete lack of privilege for the disabled, or the POC, or the gay person, etc.

  28. Donna, I get what you’re saying, but I don’t think any of us is advocating the woman thinking of her child as a burden or treating the child that way, either temporarily or for the rest of the child’s life. We are suggesting that having feelings of grief or other feelings that might not be necessarily “fair” to child after a diagnosis of disability are *not* just understandable, but acceptable, because I do not sincerely think that they are primarily rooted in ablism. My understanding of the initial grief, pain, sadness is more like what Kat said – a worry for your child out of love, a fear that you won’t be able to guide them through life now – if anything, an acknowledgement that we live in an ablist world and things are going to be harder now. Yes, there may be some initial reaction that is ablist and unfair and wrong but I do have a hard time passing judgment when someone has just been through a life-changing event (which isn’t true for the average person who locks their car doors when they see a black man). True, if she continued to reject her child, feel disappointment that was rooted in ablism throughout the child’s life, I would see right to critique that. But most of the grief and pain has to do with love for the person, not assholery, as you might think.

  29. Oh, and, I meant to add at the end: To not be disabled is to have privilege, but I’m appalled that you would suggest that being a caretaker to someone who is disabled is utterly lacking in difficulty and we shouldn’t feel sorry for that person at all. It is ridiculously hard and rarely has anything to do with ablism on the part of the caretaker.

  30. Let’s try something different, what if your daughter comes to you and says she is a lesbian. There goes all your plans for a white wedding and your dreams of family gatherings with her and her husband and 2.3 children. Let’s not be judgemental, if you throw her out of the house or “forget” to invite her and her partner to your family gatherings so that she doesn’t embarrass you in front of your parents, and aunts and uncles, and cousins, etc. Hmmm sorry that doesn’t work for me any better than thinking of a child with a disability as a burden.

    That would only be a fair analogy if the mother had booted the kid out, forgotten him, and shielded him from the family. I don’t see the mother treating the boy as a burden. I see her acknowledging that it is harder to have a special needs kid. You know, because of the Special NEEDS.

    And you know, if my kid came out to me, it wouldn’t be an issue, because I don’t have expectations about her sexuality. But if I came out to my mother, yeah, I’d expect her to take some time to get over it. And that’s okay. That doesn’t make her a terrible person.

    We’re always so concerned about that persons loss, because life is supposed to be easy and perfect for the privileged, instead of the complete lack of privilege for the disabled, or the POC, or the gay person, etc.

    Um no. The story was about the mother. If the story had been about the kid, and they talked about the mom’s loss the whole time, you’d have a point. She had fairly reasonable expectations of a neurotypical kid. Reasonable hopes and aspirations for him. And she grieved that loss. Does that mean she loves this kid any less? Hell no. I see no evidence of that. Just means it took her some time to get her head wrapped around her kid, as he is.

    Lisa – Yes, I’m aware of the issue of language of ablism. The point here is that some people feel the need to judge her, based on her own personal reaction to finding out about her child’s disability, calling her terrible, for feeling like she’d lost a child. She did. She lost the child of her dreams. She got a different one. Most of us do. Just usually in less painful and obvious ways. Begrudging her a period of mourning while she adjusted is just inhumane.

    And as for your condescending “It also couldn’t hurt to find out what autistic people say about this kind of language.” Do tell, what makes you think I haven’t? And what makes you think that they all feel the same way?

  31. I know that, like I said, my oldest son has autism.

    You know something, white people have privilege compared to POC, correct? Does this mean that white people have carefree lives with no difficulty? I never said the parent has no difficulty, but if there is a burden it isn’t the parent who has it, it is up to the disabled person to decide if his or her disability is a burden and many don’t. I doubt if my son does. The only thing he complains about is that it is embarrassing to him to be pulled from class for his one on one sessions and that he thinks he has a harder time doing homework than his friends.

  32. Well, the mother isn’t deciding *for her child* whether the disability is a burden or not. She is saying that it creates a burden for her in her role as mother, caretaker, and generally kind person who cares about the child. I don’t see how anyone benefits from denying that the majority of people are not raised to readily adapt to needs of disabled (I hate that word) children.

    If a child becomes depressive or develops a drug/alcohol addiction, there is a burden placed on the parents. But the burden does not imply negligence or selfishness on the part of the parents. By “burden” we mean that the coping skills and the means to meet the situation are challenged, and in many cases prior knowledge/parenting is reduced in its efficacy.

    Beyond these points, however, no one is bringing up the language of burden other than you Donna. That wasn’t the mother’s reaction, but it’s certainly one that you are layering on her already difficult situation. How do your criticisms help the mother and her child?

  33. I agree with Q Grrl, and I think you’ve just spouted off yet another inapplicable analogy, Donna. A parent caring for a disabled child is not the same as a white person living in a world with POC. There is a specific, unique, intimate relationship for this woman as a mother and a caretaker. This is not true of your analogy and it’s insulting to say that any sympathy felt for this woman is inappropriate because she is privileged compared to her disabled child. It’s ridiculous, in fact.

    And you are not the only one here who deals with disability. You can’t expect everyone to deal with it the same way. Though this is admittedly a different relationship dynamic than parent/child, my boyfriend, who I’ve lived with for 2 years, has a variety of physical problems that come and go and at one time had to have an operation that kept him housebound for more than a month. He did not have these problems when I met him, so adjusting to them has been difficult for me. Sometimes he’s totally fine. But other days we can’t do anything or go anywhere together because he’s in physical pain of some kind. And sometimes I do mourn the time we had before he had these problems and sometimes I do feel like it’s a pain in the ass or even a burden if I have to do all the grocery shopping or if I do more than my share of the cleaning. I don’t see him, the person, as a burden, but I think I’m entitled to these feelings and it has nothing to do with me being ablist.

  34. Maybe this analogy/real life situation will work at bit better for some. My parents have three children, two boys and a girl. (I’m the girl, btw.) My older brother is gay, I am bisexual and I think my younger brother is also bi, but he is currently married to a woman. Older brother and I have no plans to marry or ever have children; it depends on which way the wind is blowing whether or not younger brother will.

    Don’t you think our parents are disappointed? No wedding, no walking the bride down the aisle, no grandkids for the foreseeable future, if ever.

    I’m sure they are disappointed, though they have never said so. I’m sure my mom in particular was disappointed when she realized I would never marry and dad no doubt had a few thoughts about who would carry on the family name when my brothers talk about not having kids.

    I’m sure they have also had a few thoughts about where they went ‘wrong’ in raising us.

    Parents are human and they have every right to be a bit sad or disappointed. We all make up dreams and hopes and ideal futures, for ourselves, our friends and our children.

    The key, and thank dog my folks are aces on this one, is ACCEPTING the child for who and what they are and not letting any disappointed mar the fact that you love your child and want only what is best for them.

    I have no doubt the woman in the article loves her son and will do whatever it takes to help him fulfill his *own* hopes and dreams, but it’s no sin that she is disappointed or discouraged.

  35. And as for your condescending “It also couldn’t hurt to find out what autistic people say about this kind of language.” Do tell, what makes you think I haven’t? And what makes you think that they all feel the same way?

    It wasn’t condescending, it was a suggestion. You don’t come across as if you’re aware of the actual history, or that you are aware what kind of reactions the language in the article receives.

    I also didn’t even try to imply that all autistic people feel the same way about this stuff, but at least one autistic person (Nate) has already spoken up, and wasn’t acknowledged at all. Amanda Baggs has described exactly what’s wrong with the imagery used. Others have as well. Certainly, they only speak for themselves and not all autistic people, and all autistic people may not feel the same way, but they make good points and if you want to talk about how parents react to disability in their children, you really should read this stuff.

    Q Grrl,

    It’s also dehumanizing to deny a parent their own reaction to a situation. Unless you’re using a different definition of dehumanizing.

    Children with disabilities suffer more from these reactions than the parents ever will. Am I saying that parents shouldn’t react at all if a child develops a disability? No, I’m not. But at some point, it really should be necessary to deal with who the child is rather than mourning who the child is not – because who the child is still a human being with thoughts and dreams who does not deserve to be sidelined as the ghost of a dead child that could have been.

    The wording in the article reinforces that, even if the Melanie Roach herself does not wish to, and doesn’t see her son that way, the article trots out the same old stereotype – a stereotype that is often used to defend parents who murder their own children with disabilities.

  36. I am the father of two autistic sons, ages 5 and 3. As I read the viciousness exchanged back and forth here, I am horrified by the utter lack of humanity that the commenters are extending to each other, as if they were looking for a reason to stab each other rather than to extend a hand in friendship or at least mutual respect. This is the same flavor of insanity that has caused more than enough casualties in the greater feminist blogosphere in the last 30 days, striking this blog harder than most.

    Neither to fail to identify ablism at first blush with full-throat, Cotton Mather-esque self-righteousness nor to take a human, sympathetic approach to the real emotional losses endured by parents or others in the face major medical realities is evidence of bad character. To waste precious time trying to climb upon some anthill of self-righteousness in condemning another’s failure to See The Truth Perfectly At First Glance Like I Do is to engage in batshit insanity. Frankly, it’s this sort of arrogant posturing that gives the right-wing its dysfunctional emotional fuel: both when they engage in it and when they sniff fumes off of watching liberals and progressives doing so.

    You know, the Men’s Rights Advocates crowd may be idiots, but they are at least not cannibals. Maybe I will go read them for a while until Spring Fever passes here and some of you stop stabbing each other. Until then, good riddance.

  37. I love when men give advice to feminists about how to be a feminist. Especially when those men compare feminists to MRA’s.

    Come on girls, we need to be nicer to each other. It so unseeming that we fight. Why, you never know, that fighting might just drive Teh Menz away. They might turn to the MRA’s, who aren’t cannibals!

  38. There’s a funny trick going on here. The language in the story specifically said she mourned her child as though he were dead and that she worried about “all the things he’d never be able to do” like… go to school, attend college….

    Which is quite different from “It was just a huge shock, and I had to adjust my approach with him, and it’s difficult learning all this, but he’s still my wonderful son and he’ll still have an awesome life.”

    You can defend the latter. I don’t see how you can defend the former, especially by conflating it with the latter. The two are decidedly not the same.

  39. Why is she under any obligation to say “he’ll still have an awesome life”? I just don’t get that. She’s the one that’s going to be providing his support and nurturence; what if she feels she can’t live up to the bar of “awesome”? Why is she obligated to a political reading of her life circumstances that doesn’t initially ring true for what her actual experience and reactions were? Why is she expected to “get it” right away? Isn’t she entitled to a experiential learning curve?

  40. Nobody is going to “get it” right away. That’s a given. But that doesn’t mean that everyone is therefore immune from criticism. The attitudes conveyed in the piece (which I tend to attribute to the reporter first) are ableist and feed into a construct that has meant shitty treatment for people with autism for ages.

    I never said that she has to live up to any bar; I said that a person with a disability can still have a good life, different or not.

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