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Quality of Life

Blue wrote a post about Andrea Dworkin’s description of her disability, and commenters are taking her to task for it over at Alas.

Dworkin had nothing remotely “apocalyptic” to say about disability. If she’d lived another 20 years that may or may not have changed. Her last piece of writing is not at all political despite its mention of the ADA — because her mention of the ADA was completely uncritical. It’s just a personal piece, quintessentially Dworkin, really. And the sad truth is that any newly disabled person (or newly accepting of the identity) is not ever speaking politically about disability rights unless they say they are, celebrity or not.

I think that there are good reasons for the critique. If Andrea Dworkin had, say, written in such a way as to confuse impairment with disability, and fit both into ideas about misogyny and its tendency to immobilize women, Blue would be right to point out that the narrative might contribute to ableist ideas about the human body. I’m not sure that this is different.

Andrea Dworkin did not write personally, exactly–she was a political figure with a long history of activist writing. Throughout her life, she used her experiences as frames for her analyses. It is therefore not improper to read her work as political, or as being received in a political spirit. This work will be read as part of Andrea Dworkin’s radical-feminist oeuvre; if it fails to really look at disability through the lens of radical feminism, then it makes sense to point that out.

Some commenters make the point that Andrea Dworkin was at a particular point in her disability trajectory when she died. Had she survived a few more years, let alone a few more decades, she might well have interpreted her experience and position in radically different ways. I agree with this, and believe that Dworkin of all people would not have remained apolitical or simplistic about any issue for very long.

Unfortunately, she did not survive to write that update. She did not live to add another dimension to this experience. People with disabilities, feminist or not, will likely recognize Dworkin’s essays as capturing a specific response to a specific interval. People without disabilities will be less likely either to see the context or to understand some of the political problems Blue brings up.

Blue has a good reason to add the perspective of someone who has lived with a disability for a long time and in different circumstances. She is not saying that Dworkin wasn’t under a great deal of stress, or that she didn’t have good reasons for the reactions she recorded. She isn’t calling Dworkin a Bad Crip, or a bad feminist. She’s not blaming Dworkin for her response to pain and suffering, or to debilitating illness. Rather, she is looking at the words Dworkin wrote, which survived her. She’s saying that they were disappointing as an analysis of disability.

There are disability-specific reasons to complain about Dworkin’s narrative, or so Blue believes. Dworkin had every right to describe her experience as she perceives it, but Blue is not being irresponsible when she points out that parts of it fit neatly into frames that hurt disabled people. This, for example:

I agree that the operation seems “barbaric” and thinking about it gives me the willies, but I dislike how Dworkin makes these personal experiences of a common procedure out to be extraordinary. All serious surgeries cause pain, and heavy-duty painkillers do cause hallucinations. I violently beat up a sock puppet in one fentanyl-induced hallucination last November for reasons I can’t explain. After back surgery at age 16, I imagined my hospital bed was in a basement hallway and I’d been abandoned there. It took repeated reassurances from nurses and my hospital roommate to convince me I was safe and stop me from hollering for help. My grandmother saw spiders all over the walls once. These hallucinations are normal, though as individual as dreams, and are not proof of anyone’s suffering or victimization.

Dworkin’s suffering should never be minimized, least of all by Dworkin herself. However, presenting surgeries as barbaric and extreme–or mutilating, or bizarre, or monstrous–has ableist implications. Not only does it obscure the very real benefit that people obtain from them, it makes their post-surgery bodies less natural, less normal.

Brooklynite pointed out another problem with Dworkin’s essay: that she represents herself-the-disabled-women as without assistance or protection, but does not quite investigate the dimensions of that absence. Again, this is only natural; the pain is your starting point, not the subtext. A disabled person will probably color in the blank spaces with an understanding of ableism–and will probably have some ideas as to how those problems can be ameliorated. How might her friends have treated her? What would a support network look like? What options would I have in her situation, and how have I dealt with similar situations in the past? Someone ignorant of disability might not make that connection, and might ascribe Dworkin’s abject vulnerability to something inherent in impairment. The belief that impairment is inherently disabling is a misconception disability-rights activists have struggled against for years. Blue is right to be irritated that it isn’t aired out here.

The thread started discussing Dworkin’s mental health and its potential impact on her writing. I’ll just repost a comment from antiprincess’ blog, on the thread to her post about the propriety of doing so:

And, you know, her whole point is rememory and post-traumatic feminism. Her thesis is that misogyny and misogynist violence reverberates through a woman’s life–and that the threat of it sends shock waves through all women’s lives. By her logic, her perspective is specially valuable and valid because she is a survivor of misogynist violence and because she shares that vulnerability with other women. Objectivity is distance is insulation. So to turn that around and say that stress has cracked her reality open and twisted it in knots–which, again, not what you were doing–must seem especially insidious to someone familiar with Dworkin and her work. IOW, “her mental illness could be an important factor” is a very ambiguous statement not just because of traditional conflation of “mentally ill” and “untrustworthy” but because of a traditional disjunct between intimate knowledge and deep insight.

I think that this might have something to do with the disjunct. I’m sure other readers will have other responses, but for me, Dworkin’s point was about the indisputable concrete reality of pain. Pain was the place she started from, and her writing details the many ways in which the society that brought her up ignored it and taught her to ignore it. She’s fighting a dominant narrative that conflates objectivity with distance and , and dismisses her as overwrought, fatalistic, “apocalyptic,” hysterical. Even looking at my own comments, I can see how injudicious “post-traumatic feminism” was: it sounds pejorative even though my intent was only to describe her understanding of the scope of injury, not to call her irrational.

Blue seems to be coming from a slightly different angle, one that is perhaps more informed by traditional stereotypes of disability. While disabled people have not been listened to either, or allowed to speak honestly about their anger and frustration, pain in their lives has been conceived of in different ways. Suffering has traditionally been seen as a defining part of disabled lives–in fact, disabled people were not considered to have real lives because of their suffering. Dworkin was fighting the tendency to ignore pain, but Blue is fighting the tendency to assume it.


12 thoughts on Quality of Life

  1. I must confess, I’ve never been able to “get” Andrea Dworkin. I give her credit, because, for instance, she predicted the slippery slope of the pornography industry from (relatively) innocent pictures depicting nudity and sex to videotapes of very violent degradations of women, while more libertarian types like me underplayed the potential harm of porn. But I have always found her writing hard to read, partly because she tends to universalize her experiences and because she was always looking for something or someone to blame for everything. This piece suffers some of those same flaws.

    By outward appearances, Ms. Dworkin didn’t take care of her body very well. I am not “blaming” her for this– she obviously bore the scars of a heck of a lot of abuse, and there’s nothing wrong with anyone deciding to look any way they want to look. But really, is the type of knee surgery that she ended up having to get really that uncommon for very obese women in their 50’s? I’m certainly not going to assume– as she does– that a rape that she indicates occurred in 1999 was the cause of it, given that she was likely NOT in good health for a long time and that bad knees are one reasonably common result of those who had her physical condition.

    Nonetheless, I don’t see the criticism of this piece, on its merits, to be that well-founded. I am not sure she is saying anything more profound than the fact that it can be really trying and difficult, in all sorts of ways that those without disabilities never really understand, to cope with a serious disability. And that’s something that we need to hear– indeed, we need to hear more of it, because I don’t think your average able-bodied person ever thinks about it, even when they see someone in a wheelchair, or with a red-tipped cane, or utilizing sign language.

    She was obviously going through a lot of pain and having to deal with a lot of doctors and learning to cope with all sorts of limitations that her condition imposed on her, with respect to things that she (and most of us) took for granted until she didn’t have them anymore. I don’t see how that is “able-ist”, whatever that means. Rather, she was just making the point that maybe if we have a bit more understanding of the daily struggles of our fellow human beings, our personal and policy choices might be somewhat more accomodating. Nothing wrong with that.

  2. Nonetheless, I don’t see the criticism of this piece, on its merits, to be that well-founded. I am not sure she is saying anything more profound than the fact that it can be really trying and difficult, in all sorts of ways that those without disabilities never really understand, to cope with a serious disability. And that’s something that we need to hear– indeed, we need to hear more of it, because I don’t think your average able-bodied person ever thinks about it, even when they see someone in a wheelchair, or with a red-tipped cane, or utilizing sign language.

    It can be trying and difficult, but the problem with pieces like this is that they breed pity and objectification. As Blue said, she took common procedures and made them extraordinary. She had pain, she had access issues, she had lifestyle limitations – that is undeniable. But it is not the end of “normal” life or “normal” happiness, as her piece seems to suggest.

  3. I think one thing that has been lacking in this discussion over at Amp’s place is acknowledgement that given time, if Andrea hadn’t died, she would probably have had much more radical or political things to say about disability. I think she was still just coping, adjusting. I am not going to say that somebody has to go from able bodied to disabled to activist in a certain time span, and I don’t think it’s realistic to have expected it of Andrea. Who knows what the future might have held.

  4. “It can be trying and difficult, but the problem with pieces like this is that they breed pity and objectification. As Blue said, she took common procedures and made them extraordinary. She had pain, she had access issues, she had lifestyle limitations – that is undeniable. But it is not the end of ‘normal’ life or ‘normal’ happiness, as her piece seems to suggest.”

    I think you are asking too much of the able-bodied, as well as Dworkin. I understand nobody wants to be “pitied”. But believe me, too much pity is the last thing most disabled people need to worry about right now. Despite the strides we’ve made since the ADA was signed in 1991, there are still many facilities that aren’t accessible for those with various sorts of handicaps, there is still grave employment discrimination, there are still many people who won’t give the simplest courtesies for disabled persons (such as holding a door open, or not parking in a handicapped parking space).

    And a lot of that comes from the fact that people don’t even stop to consider how the basic activities of life are made more difficult by a disability. That’s not “pity”– that’s a simple sort of empathy that forms the basis of fair treatment by society.

  5. But believe me, too much pity is the last thing most disabled people need to worry about right now. Despite the strides we’ve made since the ADA was signed in 1991, there are still many facilities that aren’t accessible for those with various sorts of handicaps, there is still grave employment discrimination, there are still many people who won’t give the simplest courtesies for disabled persons (such as holding a door open, or not parking in a handicapped parking space).

    I know this – I live it every day. And while pity may not keep me from finding a parking space, or getting through the door, it does have a very significant affect on my life. The problem with pity – and the image of the helpless cripple that goes with it – is that it creates assumptions of inferiority or incapability. Pity is at the root of discrimination against the disabled in employment, in academics, and in healthcare. It doesn’t lead to empowered, independently directed lives, or to equal access to society.

    I’m working right now to document the lack of accessibility to public transport where I live caused, ironically enough, by a redesign of the transit system. When I was in high school, I advocated for the installation of ramps and automatic doors as the new school was built. But I – and many in the disability rights movement – consider these problems mere inconveniences compared with the obstacles posed by societal attitudes. Even the most well-meaning of attitudes can be problematic if inspired by pity (a good example of this is the way many airlines handle the needs of disabled passengers – good intentions, but at the expense of autonomy and dignity in many cases).

    I understand why Dworkin felt as she did – becoming disabled is for most people a lonely and frightening experience. But the essay in question was not a very helpful analysis of disability, and understanding the motivations of the author doesn’t mean we should pretend otherwise.

  6. I think the piece said a lot more about the psychological and emotional toll of chronic, unrelenting pain than about disability, per se.

    Dworkin’s primary problem seemed to be that everything hurt, no matter what. She probably would have been almost equally miserable in a society with excellent access for the disabled.

    I think Dworkin is unable to separate her own agony from the larger social and political issues having to do with disabled people per se.

    She seems almost oblivious to the biggest political issues in her story: access to healthcare and especially to aggressive pain management.

  7. Suffering has traditionally been seen as a defining part of disabled lives–in fact, disabled people were not considered to have real lives because of their suffering. Dworkin was fighting the tendency to ignore pain, but Blue is fighting the tendency to assume it.

    Piny, thanks for articulating this.

  8. Gordon, I am suree you know a lot more about disability discrimination than I do, but I have to doubt that pity is really the cause of most discrimination against the disabled. I think differentness probably is, and stereotypes about how much of a “hassle” it is to deal with disabled folks is a big reason as well.

    I am not saying “pity” is good. But EMPATHY is good. I guess the way I would separate them is “pity” is thinking “what a shame that this person can’t do all the things I can”, whereas empathy is “I need to be considerate of this person, because I have an idea of what he or she is going through”. And people with the latter attitude, I would think, would be LESS likely to discriminate.

  9. But believe me, too much pity is the last thing most disabled people need to worry about right now.

    Hmm, definitely not the last thing. It’s up there on the list because its presence indicates so much. And it’s a subtle leap to empathy. If someone feels the desperate need to give me either, there’s a good chance the term doesn’t matter and I’m about to be treated differently than a nondisabled person would be treated.

    By “hassle” you mean accommodation?

    Also, I agree with Lindsay Beyerstein, above.

  10. By “hassle”, I mean the way many able-bodied prospective employers, and people who provide services to the public, view the disabled. As in “if I hire this guy, I’m gonna have to spend all sorts of extra time and money and institute all sorts of programs and training that I wouldn’t have to do if I hire the other guy”.

    THAT, rather than “pity the poor disabled person”, has GOT to be the primary reason for discrimination against the disabled.

  11. Let me add something to this. When I ride municipal buses, which have wheelchair lifts, I have, on numerous times, seen drivers see a stop with a person in a wheelchair waiting for the bus and drive right by it. Now, if you ask the driver about it, they’ll mumble something about the lift being broken, which of course is usually not the case.

    But the problem, the root of the discrimination, is not wanting to have to deal with the disabled because of extra “hassle”.

    Empathy, I think, is a necessary part of any solution to that discrimination. If that bus driver is able to understand what it is like to have to be in a wheelchair and dependent on that bus stopping for you, he or she may be more likely to stop.

    Really, I have to say that all this condemnation of pity sounds like a very academic, upper-class view of what’s wrong with how society treats the disabled. Many of the disabled are very poor. Many cannot find work. Many are dependent on government assistance, and public buses, and public health care and services. What they need is more assistance. Worrying about the fact that they are being treated “differently”, or about “able-ism”, or about too much “pity”, really is the least of their worries. They just want the next bus to stop for them– whatever the reason.

  12. Michael J. Fox once said that “pity is a step away from abuse,” which I believe to be accurate. And I think what you’re calling a “hassle” is the old stereotype that disabled people are a burden.

    You’re right that many of the disabled are very poor. But “pity” is part of what keeps us from being able to empower ourselves, pity is part of the paternalistic dependence used to set us apart. It’s not empathy that creates government programs where someone else controls the money and hiring of who cares for us, continues with aid programs that make it impossible to become usefully employed because any salary we get will never cover our daily costs and there’s no incremental program to help span that gap. Ableism and pity are the key to why the disabled have so many of the worries we do.

    You seem to agree that the poverty of disabled people has social causes. Why do you suppose society has created these problems for disabled people? Attitudes are at the root of this.

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