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Gender Discrimination in Unexpected Places

A new study shows a gender gap in kidney transplant rates. Unsurprisingly, women — or, I should say, certain women — are on the bottom end of that gap.  This is the case even though women fare just as well as or better than men of the same age.

The researchers examined data from the United States Renal Data System, including a list of 563,197 patients who developed end-stage kidney disease from 2000 to 2005, and they calculated the likelihood of getting on a transplant list, adjusting for factors that would affect the patient’s survival after surgery.

They found that women 45 and younger were as likely as men to be placed on a transplant waiting list. But as women aged, their chances of getting on the list dropped, getting worse with each decade, said the lead author, Dr. Dorry Segev, a transplant surgeon at Johns Hopkins.

By the time women were 46 to 55, they were 3 percent less likely to be put on the transplant list. They were 15 percent less likely to be placed on the list at ages 56 to 65; 29 percent less likely at 66 to 75; and 59 percent less likely to be listed by the time they were 75 or older, Dr. Segev said.

What is the cause for the gap, and the way that it progressively widens as women age?  Well, the answer to that isn’t known for certain, but Dr. Segev puts in an educated guess that sounds about right to me.  He believes that women’s families are more likely to see them as frail and unlikely to survive a transplant, and therefore don’t put them on the list at all.

Of course, the stereotype of older women as frail is a very common one.  The phrase “little old lady” rolls right off our tongues, and though it’s not unheard of, the phrase “little old man” is significantly less common.  Older women are regularly portrayed by the media as having limited mobility and therefore helpless and fragile (a form of ableism as well as ageism, I think).  Even though, as all of the research shows when it comes to the results of kidney transplants, they’re not.

That’s the thing about stereotypes.  Lots of people like to argue that they’re “harmless.”  And also, these same people tell us, they’re mostly based in reality, so it’s all okay.  Except that stereotypes of all kinds cause things like this.  I hate to get all dramatic, but it’s true, and this is only one of many examples.  Stereotypes can, and regularly do, cost lives.

That’s no reason to put aside any and all other possible explanations for the gender gap.  Off the top of my head — since women are taught to be so much less assertive than men are, and since we’re also taught from birth to not be a “burden” to our loved ones or make too much of a fuss — I wouldn’t be surprised to find out that women are statistically less likely than men to stand up to their families when these kind of decisions are made.  Or that they’re more likely to make the decision themselves in an attempt to avoid being a “burden.”  Elderly women are also at a higher risk of living in poverty than elderly men (pdf), and heart wrenching though it sounds, therefore may have more economic concerns influencing their decision.  Or, after hearing the message for so long, these women could have simply come to seen themselves as more fragile than they are.

But I’d still be surprised if Dr. Segev’s speculation was based in nothing but fantasy.  And regardless of whether or not he’s right in his speculation, my alternate explanations are more accurate, or there’s a wholly separate cause at work here, we clearly ought to be concerned.


28 thoughts on Gender Discrimination in Unexpected Places

  1. they’re more likely to make the decision themselves in an attempt to avoid being a “burden.”

    Goddamn…that statement hurts. My grandmother was ill for a long time and I remember the hurt in her face the last time I saw her. She said to me that she was tired of being a burden. I laughed it off and said she could never be a burden to any one…she made us all laugh too much, but I don’t think she really believed me. My grandfather on the other hand lived a decade longer than her with similarly severe health problems. Even at his worst I don’t think he felt like a burden…he thought he was helping, arranging and sorting out all of our lives until those last few months.

    I wonder how much their different outlooks on frailty influenced how many years we had together.

  2. Thanks for bringing it back down to a personal level and sharing a story from your own life, Kristen. It is a good question.

  3. This one hits home hard for me. My 68 year old mother may need a kidney transplant. At the very least, she’ll need to be on dialysis and Eprex injections forever.

    Dr. Segev puts in an educated guess that sounds about right to me. He believes that women’s families are more likely to see them as frail and unlikely to survive a transplant, and therefore don’t put them on the list at all.

    Their families? Oh blow me. What an asshole. Putting it on the families. It’s the fucking doctors who do this. The fucking doctors who keep saying stupid sexist bullshit things and trying to talk us out of aggressive treatments. Or asking her if she’s refusing to take her medicine so that she can get attention. Seriously. She takes her meds religiously, but because they’re not working, clearly, she’s just not taking them for attention. Lousy fuckers.

  4. Luna has it right, I think. Women are seen as hysterical and making up their symptoms. Furthermore, they are urged to stick to the “natural” far more than men are. This means that “health foods” like fruit and yogurt are gendered female, exercise and avoiding caffeine are considered cutting-edge treatments for excruciating menstrual pain, and women aren’t offered the best medical treatment even in life-threatening situations.

    It’s actually enough to make me wonder about how the risks of hormone replacement therapy have been studied and reported. The media often do a terrible job of interpreting scientific data on risk. I’m not sure if the risks were initially ignored because women’s health isn’t taken seriously, or if they’re being overstated now because of the cultural bias against “unnatural” medical intervention for women.

  5. (Being told to eat more fruit and yogurt probably has a good outcome, except when one’s health problems are automatically seen as resulting from a failure to do so.)

  6. Well, the answer to that isn’t known for certain, but Dr. Segev puts in an educated guess that sounds about right to me. He believes that women’s families are more likely to see them as frail and unlikely to survive a transplant, and therefore don’t put them on the list at all.

    Begging the question, of course, as to what families are doing making the decision to go on the transplant waiting to begin with. Unless a patient is incapable of making their own medical decisions or legally incompetent, this is a decision made by the patient in conjunction with their treating physicians (plus miscellaneous hospital staff, etc.). And notice that the gap begins well before an age where you’d expect competence to come up frequently.

    This is not something that can rationally be pushed off on families.

  7. It’s actually more complicated than this. (I’m not disagreeing with anything you are saying, all of those factors play into this) But one thing that always angers me is saying it’s blaming the fucking doctors, or the fucking cops, or whatever fits the story. Obviously those institutions are steeped in patriarchy/racism and therefore can create people that promote these systems. But when people make blanket statements, it comes off as ALL doctors or cops or CEOs are anti-feminists. And that’s not true. There are feminists everywhere, including in all those professions, and they are working their asses off to try and change these professions.

    As far as transplants, the disparities against women goes into every aspect of care. Most of the research is done on white men, and just assumed to work for women/POC the exact same way. For example, liver transplants are extremely regulated with a standardized score that has been researched. (I’m sure it’s possible to abuse the system, but it’s harder). However, all the standards to get the transplants are based on numbers from mostly white men, which the “others” don’t fit, even if they are the same “level” of sick. So then white men have higher scores and get the transplants.

    Also, transplants matches tend to be racially similar to the patient. And all the drives that encourage people to have transplants, or to donate bone marrow, started in the white community, and neglected POC. While this is changing, there are simply more available options for white people who need bone marrow transplants, since the more people tested the greater chance of a match. So if you are a POC, you have to get your family and friends to get tested for a possible match, which you have to pay for. Another barrier.

    As far as hormone replacement therapy, I think main stream media did a horrible job explaining it. If you actually read the study, there is an increased risk of heart problems the first year, and a DECREASED risk of heart problems after that. So in my mind, if you start taking hormone early (at 50 most women don’t have a very high risk of heart problem) you will be slightly higher than your low risk for the first year, and then have a lower risk later in life, when your natural risk of heart disease climbs up. Theoretically it should be the same with strokes. Now the study didn’t actually look for this, so it isn’t proven, but that’s my plan. This also doesn’t consider cancer (current theory is that hormone suppress some cancers and promote others). So there are definitely reasons not to take hormones- high risk of heart disease or cancer, it’s not all bad.

  8. Or that they’re more likely to make the decision themselves in an attempt to avoid being a “burden.”

    There’s a gender gap in euthanasia rates that people speculate is for this reason.

  9. Something that you made mention of, but didn’t explicitly spell out in this way, is that perhaps this has to do with lack of money and healthcare coverage, given the wage gap and the decreased SS payments that women tend to receive, which makes women less likely to be able to afford the procedure, or afford it in a medical environment that they trust with their life.

  10. In our society, women are simply valued less. This will, consequently, affects things like quality of health care.

    When my father got sick, he went to the doctor and was quickly sent for testing. They found out he had colon cancer. He went directly into treatment, though he was too far along for them to help him. (This is a cancer that is often diagnosed too late; also this was 30 years ago.)

    However, when my mother got sick and started having headaches that made her literally pass out, her doctor told her it was “just migraines” and refused to send her for a CAT scan. My sister and I fought tooth and nail for her to no avail, and eventually had to take her to a different doctor, and then another. Turns out she had a brain tumor. But for over a year, nobody wanted to believe that she wasn’t just overreacting.

    I should point out that this was in Ontario, so there is no insurance issue.

  11. I’m with RacyT on this one. In “The Beauty Myth”, Naomi Wolfe acknowledges this on page 230 in a section that describes how American culture values positive female aesthetic appearance over health: “Women must not be blamed for choosing short-term beauty “fixes” that harm our long-term health, since our life spans are inverted under the beauty myth, and there is no great social or economic incentive for women to live a long time”. While we’re specifically discussing how women fare in the health community here, I believe that the sentiment is just as legit in regards to women’s health in general as it is our response to cultural expectations. Yep–we’ve made it to the 21st century, and American mores still SUCK.

  12. Not being an American, it doesn’t seem to make sense to me. Since women in almost every culture live longer than men, therefore it makes sense to give the transplant to women assuming the transplant patients are around the same age since they will actually use it for longer than the men who will die off earlier anyway.

  13. Let me echo the comments of several who posted above, that elderly women are automatically devalued in most all medical regimens because they are female. In fact, even if they express themselves, they are often medically overridden by appealing to the family. When it comes to competitive placement for therapy, they are shoved to the bottom, especially where boards make the decision as to who gets what. Having served on these boards as a pathologist, I can say that gender plays a huge role in decisions…not the only one…but one that impacts the lives of many. As we point out in our upcoming book on Woman’s Sexuality, elderly women are at high risk when it comes to medical procedures. Until women learn they have a choice and are willing to exercise that choice, we will be stuck in the same hole we’ve been in for the past 3,000 years.

  14. I don’t get your conclusion.

    Women are not on the list because… well, we don’t know why. Not only do we have no particular reason to guess “it’s patriarchy,” but we don’t even know if the whole “fewer women” issue is BAD. Your explanation seems like a very complex hypothesis for what is possibly a very simple problem.

    IOW, before we start worrying about why women aren’t on the list, we FIRST need to be sure they want to be on the list. So we need to eliminate, as a random example, that the women aren’t on the list because they are more likely to feel that they’d rather have a shorter life but not go through surgery, etc.

    My guess? They want to be on the list. But that’s just a guess–it could certainly be possible that something about men and women in society leads women to feel differently about transplants than men.

    The next thing is to eliminate all the more obvious factors. Do they know about the list? Do they visit different doctors, which doctors make fewer referrals to the list? Are they served by different hospitals, which make fewer referrals? Is it based on socioeconomic issues? race? Location?

    Could it be an issue of frailty/patriarchy/etc? Yes, absolutely. but it seems very strange to conclude that this is the result, or even a very likely result, based on so little information.

  15. The next thing is to eliminate all the more obvious factors. Do they know about the list? Do they visit different doctors, which doctors make fewer referrals to the list? Are they served by different hospitals, which make fewer referrals? Is it based on socioeconomic issues? race? Location?

    Could it be an issue of frailty/patriarchy/etc? Yes, absolutely. but it seems very strange to conclude that this is the result, or even a very likely result, based on so little information.

    I just find it endlessly fascinating that you seem to think your other suggestions (one of which I did suggest myself, btw) are not at all linked to patriarchal oppression (and I didn’t use the word “patriarchy,” either, btw). Gee, if true, the fact that women just so happen to somehow not know about the list, or to visit doctors who make fewer referrals couldn’t possibly have anything to do with gender discrimination . . .

  16. As someone who has multiple chronic conditions and happens to be female (and in her twenties rather than elderly). I have to echo what many have said here and what the Dr also said. I sincerely believe from my own experience, that women are just seen to be not capable of accurately reporting their conditions. I was accused of all kinds of things, given incorrect diagnoses, and told multiple times it was psychological before receiving the correct diagnosis and subsequently my health and dignity back. And this wouldn’t have happened if I weren’t so stubborn and skeptical.

    My grandmother is 94 and I have taken her for regular check-ups on occasion and have witnessed how she is treated. This is a woman who still lives on her own and has taken excellent care of herself, and yet doctors talk to her as though she’s 5. Somehow, if my grandfather were still around, I suspect his treatment would be different.

    I can only imagine that on the ends of the age spectrum both very early adulthood and elderly states that the distrust in a woman’s ability to judge her own symptoms increases.

  17. # Cara says:
    January 27th, 2009 at 11:14 am – Edit
    I just find it endlessly fascinating that you seem to think your other suggestions (one of which I did suggest myself, btw) are not at all linked to patriarchal oppression (and I didn’t use the word “patriarchy,” either, btw). Gee, if true, the fact that women just so happen to somehow not know about the list, or to visit doctors who make fewer referrals couldn’t possibly have anything to do with gender discrimination . . .

    Huh?

    I said (and you quoted me as saying) “Could it be an issue of frailty/patriarchy/etc? Yes, absolutely….

    So I don’t know why you think I am saying that it is “not at all linked.” To make the important logical distinction, I am saying that it is not sufficient data to assume it to be linked, which is quite different than saying it can be assumed not to be linked. Those aren’t the same thing at all.

    Sometimes things are the result of discrimination. Sometimes they are the result of structural problems. you have to solve them differently.

    For example, women generally go to gynecologists as well as internists/generalists, while men tend to go only to a single doctor. We know that our system does a bad job of coordinating prescriptions across doctors and I believe that holds true for other medical issues; could there also be an issue with transplant lists? Does each one of those doctors think that the responsibility lies with the other? This could be the result of oppression against women, or it could be the result of a neutral issue which just happens to hit women in this scenario because they see multiple doctors.

    Or: women tend to outlive men–is this a factor of being single, or having a loved one die? Do people with a deceased spouse or partner have less motivation to get on the list; are these most often elderly women? And so on. And incidentally, something like that would be an example of a non-discriminatory explanation.

    I am not debating the FACT that they’re not on the list, nor am I debating the very likely conclusion that the disparity is bad. I just think we’re nowhere near a conclusion about WHY.

    If you reach an early conclusion based on insufficient data, then you may miss the actual solution. IOW, maybe we need to promote conversations about health for families. Or maybe we simply need to let gynecologists know that they should put “transplant list” on their “things to talk about with patients” chart. Or maybe (though I strongly doubt it) we need to do nothing at all, because those 3% have their own good reasons for not being on the list.

  18. When we were in the hospital with my dad at Thanksgiving and making the decision not to pursue aggressive cancer treatment (well, his advance medical directive made that decision, but I was the one signing the papers because he also has Alzheimer’s), almost every doctor we talked to was surprised that we weren’t pursuing aggressive treatment (which he didn’t want, regardless of whether he was lucid or high on steroids, and which would merely have been painful and at best prolonged his life–with Alzheimer’s, in a care facility–a few months). I don’t think it’s the families not wanting to pursue treatment. On the other hand, the doctors didn’t try to discourage us from treatment, either–we were fortunate to have very good doctors who explained the pros and cons and let us decide.

    Don’t get me started on doctors who treat Alzheimer’s patients like toddlers, either. Up until 2 months ago, my dad was quite lucid and coherent, even if he couldn’t remember what he ate for lunch.

  19. Women are not on the list because… well, we don’t know why. Not only do we have no particular reason to guess “it’s patriarchy,” but we don’t even know if the whole “fewer women” issue is BAD.

    So… it disproportionally affects women and it results in more women dying? But we’re somehow getting ahead of ourselves by suggesting either that the patriarchy might play a role, or that women dying is a *bad* thing?

    My grandmother is 94 and I have taken her for regular check-ups on occasion and have witnessed how she is treated. This is a woman who still lives on her own and has taken excellent care of herself, and yet doctors talk to her as though she’s 5. Somehow, if my grandfather were still around, I suspect his treatment would be different.

    I definitely think that at least some of this is unconscious on both parties’ parts, in a very self-fulfilling prophesy way. An older man might expect more respect and therefore act entitled to it, an expectation the doctor might then unconsciously pick up on and conform to, giving the man even more reason to expect that good treatment the next time, and so making him carry himself with even more confidence. The older woman, on the other hand, doesn’t expect respect (and why should she? she’s never gotten it before) and so will tolerate a less respectful attitude, or even just behave/speak more naively and submissively, which the doctor may then use as an opening to roll over her, quelling her further. (Of course some people are just dicks and don’t respect women no matter *how* they act, which is true for doctors just as much as for anyone else of course. This certainly isn’t meant to sound like victim-blaming! More like self-defense-through-self-identifying-as-a-bitch-who’s-gonna-get-what-she-came-for. ^^)

  20. …and of course, the way the patriarchy works is that women who don’t expect to be treated well are seen as “normal” and are used as a justification for doctors to talk over *all women*, while women who insist on better treatment are strange outliers that in no way suggest that the doctor’s *own* behavior should change. :p

  21. I read a similar article a while ago and a lot of recent medical gender issues state that one of the underlying factors in bias is that doctors are not taking women’s medical concerns seriously. Specifically, they are not taking complaints of symptoms seriously. I read that it is also related to issues with heart conditions.

  22. There is also massive bias in medical research on conditions for women and people of color. And I keep reading countless articles about how we are now finding out so many negatives are related to certain hormone replacement therapy. I know that is a controversial topic, but there are so many gender based discrimination in the medicine in general, nothing surprises me anymore.

  23. I’m not entirely sure that women are less likely to be forward about consulting their doctor. In my experience man are far less likely to come forward for treatment or tests because men are more embarrassed/put it off.

    Women are far more likely to go to their doctor for tests and are far more used to talking about their bodies than men.

    Perhaps because men wait till later to go to their doctor, they are treated more quickly because it has become more urgent.

    However, despite women being more forward about consulting their doctor, I think they are, conversely, less likely to want treatment. They usually respect their health/bodies more than men and see treatment/operations as an invasion whereas men are more of the mentality of “OK, get the operation, get it fixed”.

    These thoughts are my opinion but my fiance is a nurse and has told me many times of the differences between men and women when in hospital for treatment.

  24. In re: Sailorman.

    I’m a proponent of not reaching conclusions until you’ve asked the right questions and gotten the right kind of data, but it seems to me that your argument here is undercut by the work cited. I haven’t read the original research article, but it appears that the people included in this study were all in end-stage renal disease. Unless women are significantly more likely to be diagnosed with end-stage renal disease as a result of a lack of appropriate diagnosis and care prior to this (i.e., they somehow manage to make it through the system with serious kidney disease without it being picked up until they’re clinically very advanced), then they should have an equal chance of making the list as men. These women (and men) would be under the care of a nephrologist for their kidney disease, not an ob-gyn, etc. It’s my understanding that people are added to the transplant list by a nephrologist with specialized training in transplant service, not by general practitioners or family medicine docs.

    What you’re saying could have merit if physicians are less likely to refer women to appropriate nephrology specialists until their disease is more advanced than men, thus making them a poorer candidate for transplant. But, since this study controlled for those issues (from the article: adjusting for factors that would affect the patient’s survival after surgery), what you’ve got here is a group of people who should be on a level playing field and who, obviously, aren’t.

  25. By the way, I should have stated for the record that I am a kidney transplant recipient.

    I actually haven’t seen a real difference between the way men and women appear to be treated (although I am not privy to other patient’s consultations). I have, however, seen a small difference in the way men and women react to treatment (female patients tend to be more demanding on staff and see treatment as a right whereas men see it as something that has to happen in order to get a problem fixed) but I don’t think it is as significant as the age gap. Most people who go in to end stage renal failure at an older age seems to find it more difficult to adapt whereas someone who starts dialysis at a young age appears to accept it more.

    I realise, as someone with a science degree, that these views are entirely objective. I’m afraid don’t have any hard data to hand so I can only go on observations.

  26. It shouldnt matter what sex your are. Any friend or family member of mine should get the best possible care. A doctor should not say oh its a female so I dont have to work as hard. I think thats wrong. If its my Grandpa, Grandma, Dad or Mom I want them to have the best care.

  27. Both my grandmas passed away before my grandpas of heart attacks. My two grampas passed away of cancer. Perhaps more attention to heart illness should be paid attention to females and cancer research should be appled more to males.

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